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- My Intestines Got Sucked Out In A Swimming Pool | TRULY
- The Teen Whose Skin Grows Too Fast | BORN DIFFERENT
- My Body With 85% Burns | TRULY
- The Besties Obsessed With Pink & Yellow | HOOKED ON THE LOOK
- My Husband Helped Me Love My ‘Super-Fat’ Body | TRULY
- I’m 23 And Turning To Stone | BORN DIFFERENT
- I’m More Than Just My Wrinkly Skin | SHAKE MY BEAUTY
- She’s My Fiancée AND My Carer | LOVE DON’T JUDGE
- I Won’t Hide My Vitiligo | SHAKE MY BEAUTY
- The Teenager With Vanishing Bones | BORN DIFFERENT
- A Stroke Stole My Voice | BORN DIFFERENT
I’m 23 And Turning To Stone | BORN DIFFERENT
May 24 2019
A RARE medical condition has left a young woman in effect ‘turning to stone’. At just 23-years-old Carli Henrotay’s mobility is already severely restricted: she can’t raise her arms above her head and uses a wheelchair to get around; while her jaw only opens a few millimetres. Carli has Fibrodysplasia Ossificans Progressiva (FOP), which causes muscle and connective tissue to slowly change into bone. FOP has a life expectancy of 40 and there are currently only 800 people worldwide known to have the condition. But despite suffering from the condition, Carli lives as positive a life as possible and recently moved in with her boyfriend of six years, Billy.
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