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Luciana's FOP Battle: The Girl with Muscles Turning to Bone
May 19 2024
Meet Luciana Wilin, a brave 7-year-old girl facing the rare condition of Fibrodysplasia Ossificans Progressiva (FOP). This genetic disorder causes her muscles and tendons to gradually turn into bone, essentially transforming her body into a living statue. Luciana's journey is one of bravery, strength, and the unwavering determination of a young girl who refuses to let her challenges define her. Join Luciana as she navigates the complexities of living with FOP, from joyful moments with her friends to the careful management of flare-ups. Explore how she and her family cope with her condition, their dreams for the future, and the unbreakable bond that sustains them.
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